Showing posts with label medication taper. Show all posts
Showing posts with label medication taper. Show all posts

Tuesday, November 29, 2022

THE BAD NEWS IS...

 You can get akathisia from Cannabis. I’ll just leave it at that for now, but will expound later.



FRIENDS! Hi!! Hi!!


I’ve missed you. Have you missed me? I thought not.


Before I expound on the statement above, I wanted to brief you on my experience with getting off prescribed medications.


Let me tell you, it was not an easy process. I knew there would be bumps in the road, but I was not prepared for the size & shape of said bumps. Downhill, craterous, unpaved moonrock roads into the warzone of your own skull.


In May of 2022, I realized i was so goddamned happy & content & joyous & grateful in my life! I could barely contain all the happiness I felt. I was on top of the world!


I was also on way too many medications:


Testosterone (for gender dysphoria)

Gabapentin (for anxiety)

Cymbalta (for depression)

Seroquel (for akathisia)

Atorvastatin (for high cholesterol)


I was taking pills or injecting oils all day long. I thought, surely I don’t need ALL of this shit to live a good life.

So I made the executive decision to do a slow taper off the Cymbalta & the Seroquel. I had been advised in March 2021 to get off the Seroquel as soon as possible. I stayed on it for a year & 1/2 because I loved the sleep!!


But on Jun 1, 2022 I began to taper off the Seroquel. This was relatively easy. It was a two week taper, which is kind of fast, but I didn’t have too many side effects except insomnia for a week or two.





I gave myself a few weeks without Seroquel before I started to taper off the Cymbalta. I started around Aug 15 and knew immediately that getting off the SSRI would be more difficult. There was dizziness, nausea, and one night of vomiting in the first week. Then came about 10 days of brain zaps & shivers. These are just what they sound like — your brain literally feels cold & does a little shiver. Every few minutes. Then there would be surges of electric-shock sensations. Like lightning inside your skull.


Your brain is the original electronic device.


And that was made illustriously clear to me as I felt all my electricity going haywire for weeks. I was tempted to stop the taper & just stay on Cymbalta for the rest of my life. But I persisted. I thought…this will go away eventually. And it did. The brain shivers, the zaps, the dizziness all went away by Sept 15.


But then I was left managing mood swings that were way out of my control. Mania, rage, deep sorrow all swirling senselessly…non stop…and fast. One to the other to the other in a matter of seconds. As a Water Sign, I’m used to feeling my moods swing but this was not a normal pace, nor a normal weight of emotions. The pendulum was hitting every extreme and there was no “reasoning with it.” There was no self-talk that could’ve slowed it down or relieved it in any way. Trust me, I tried.


And I wanted so badly to just get back on the drugs and feel as happy as I did in May & June & July. But I thought…these terrible mood swings will go away eventually. You just have to be strong for a little while.


I knew I could create my own happiness. I had been doing it all my life. Fighting the horrible sadness of being human with my own tricky imagination. I wanted to be in charge of manufacturing my own solace. I knew I had that capability & just had to remember how to do it.





But friends, October & November were barely survivable. There were many occasions where I seriously thought of ending my life because the sorrow or rage were too much to bear even for 10 minutes. 


The 10 minute increment has worked for me over the years. To get through bouts of depression. To get through akathisia. Even to get sober! I used to look at the clock when I first quit drinking & tell myself “Congratulations, you’ve been sober for another  10 minutes!”


But I got tired of counting minutes. In the early a.m. hours of Nov 5, I walked to the cemetery alone with intentions of ending my life. There I conferred with the spirits for an hour or two, and decided to keep counting the minutes until I got through all this awful, unpredictable brain activity.


I was not getting the proper help from medical professionals. Their only advice — the only option they offered me — was to get back on an SSRI. It was clear they were only interested in selling me a name brand drug, and profiling me as a drug addict of course. They were not interested in “listening to my history, or hearing me as someone who had educated himself on his own mental health needs”.


After deciding to live through it, I did reach out to a few friends who had offered to help. For them I am eternally grateful. You know who you are, if you’re reading this.


So…here I am…it’s the end of November, a month that began with an ending in mind. I can confidently say that I’m feeling much better than I did even a week ago. My brain is much quieter and slower now. I have control over my thoughts & emotions that I didn’t have for the past 3 months.


I know I’m not out of the woods yet. I am on guard. The sadness and rage are my mortal enemies and I’m ready to do battle at any time of day. Waking up from sleep is the most dangerous moment of the day.





I tell you all this stuff not so you feel sorry for me, not so you can profile me as a crazy person just like the doctors do, but so that you can gauge your own experiences with Big Pharma & Corporate Medicine. 


If you are a person who is thinking of going on medication to manage feelings of depression or anxiety, look at my experience. Are you sure this is something you can’t get through without drugs? Because the drugs will help for awhile, but when you feel like maybe you can do without the drugs, you will have to go through an even worse experience than regular old depression & anxiety.


If you are a person who is currently taking a medication like Cymbalta (an SSRI, serotonin re-uptake inhibitor), do you realize how hard it will be to stop taking this medication? Do you know that many of these medications will cause akathisia if you are on them for too long, and the only thing doctors will tell you about that is that you need to switch medications? They may even tell you that your depression/anxiety/bipolar is getting worse & you will have to take medication forever.


I wanted off that runaway train. I finally feel like I am off the train, but I’m still too close to the tracks. There is relief, but I’m still very scared. My time at the cemetery on Nov 5 was a spiritual revelation that has given me strength & hope over the last few weeks. I know you all laugh at my spiritual experiences because they are unquantifiable by you, unfounded in facts that you can look up online, and unlike anything you’ve ever sought after in your life. 


But…I still say everyone should pursue the spirit realm for answers rather than the medical realm. The medical realm is there for emergencies of the body…the spirit realm is there for emergencies of the spirit. The trick is to know yourself well enough to decipher the difference.


Alright…now I’m kind of tired. I may have to expound on my opening statement another time. I promise I won’t wait 3 weeks or whatever it’s been…


Stay well, friends! Seek those spirits. I’m serious.





P.S. I forgot to mention that just by going off anti depressant/anti psychotic meds I lost 10 pounds. These drugs do make you kind of fat & unhealthy. I had much more energy — actually way too much energy for awhile — to ride my bike or sing, just more energy for daily activities as well. Then I lost even more weight.


So I was also able to stop taking my cholesterol medication. No harmful side effects felt from that.


Now I’m only on:


Testosterone (for gender dysphoria)

Gabapentin (for anxiety, too low a dose to go through those pharma withdrawals, but okay now)


If you can, read my blog Adventures in Akathisia 2014, before I expound on the cannabis/akathisia connection.

Wednesday, August 24, 2022

BEIGE ACCENTS & GRAY INTONATIONS

 FRIENDSTERS & FRIENDSTRESSIXES,


Join me in a chorus of halluluiah for the bounty of srtwork you are about to receive!! I’m so excited to present to you new ART called:


1. NO GRAYS IN SIGHT


2. NO BEIGES IN SIGHT


3. RUFUS & INGRID REACH A PEACE AGREEMENT RE: THEIR SINCERE APPRECIAYION FOR EACH OTHERS CULTURE


It has been about a month & a half since I checked in with you all, my spies, my lookers!! I loved you & missed youthe whole time though, trust me. Believe me.


I have SO much to catch you upon.  SO MUCH in fact, that I probably will NOT cover it all today. IN FACT, i may just leave you with an outline of what to expect to read about in futurre blofs.


1. TRANS/DETRANS UPDATES


a. seeing fewer FtMtF detransitioners telling their stories online


b. seeing more content from MtFtM detransitioners, but not a whole lot


c. seeing lots more comedic content from trans/gay folks. Netflix better be handing out comedy money to the queers that’s all I be saying.


d. this is all going in the direction I had hoped it would. I have found my foothold in the belief that while trans & nonbinary may be “trending’ for a few more minutes, and that not everyone who experiences gender “discomfort” needs to medically transition, there will not be a return to the days where gender is just assigned & accepted without question.


2. AKATHISIA UPDATES


a. along with trans/detrans shit, I also continue to do research on akathisia


b. I have found out lots of interesting, shocking stuff


c. I will share it with you soon


d. but here is a little tidbit: I know Robin Williams died form akathisia not Lewy Body Dementia


e. also…I have had akathisia 2 times. Recently in 2021, but also in 2014. I will explain the hows & whys in a futturre blog


NO GRAYS IN SIGHT (Aug 2022)



3. MY OWN PHARNACEUTICAL UPDATES


a. because I’m a person who values my big fat electric brain, I’ve always been against pills/pharmaceuticals/antidepressants/etc…


b. but due to circumstances that sometimes happen, I found myself having to take such drugs a few years ago 


c. now it is time to reevaluate what my big fat brain does & doesn’t need from big pharma


d. as you can probably tell by all the exclamation points & misspellings, I did a quick taper off the Seroquel in June. It went well. No real side effects, except INSOMNIA. 


e. SEROQUEL is a magical drug. But like all magical drugs it is VERY dangerous if you take it for too long. I was advised by the doctor who put me on it to taper off as soon as I felt I could.


f. I REALLY enjoyed the sleep that SEROQUEL allowed me to have. As a lifelong insomniac, that was a real TREAT. and the dreams!! The gorgeous Seroquel dreams…  so vivid & complex… ALAS!!!


g. it’s back to being awake at all hours. 


h. in August I have been doing a much slower taper off duloxetine (Cymbalta). Cymbalta is an SSRI, so it is not magical, just effective. Whatever part it played in regulating my dopamine levels back in 2021, I am grateful for. But I really, really hate SSRIs as a personal rule.


i. no one ever told me to taper off the Cymbalta but I am going to anyway, so I can see if I really need anymore.


j. so far, I have experienced a terrible 2-day migraine, nausea, & an edgy temperament bordering on rage occasionally


k. I experinced ZERO rage in the year & half I was on SEROQUEL & Cymbalta. It was nice. I’m using CBD oil to manage the edgeness. It works pretty well.


l. I am really hoping the edgy temperament is due to the taper, not a sign of how things are gonna be. Because really… I have no real thing to be rageful about…anymore…


m. OR DO I?


4. POETRY UPDATE


a. my poetry carrer is going well. i am so close to being famous I can almost tongue-sense it. 


b. I sent out a bunch of subs late last year, and early this year and got lots of REJECTIONS and several acceptances too


c. But I’m about to embark on 2 YUGE poetry endeavors


d. First I start working on a chapbbok or even manuscript length chronicle of what happened during & after my last psychic safari (SHAMANISTIC FIGHT CLUB)


e. YOU ALL read the streams of consciousness that accompanied SHAMANISTIC FIGHT CLUB. I know you did.


f. and you think I’m a spiritual narcissist for daring to have such an adventure while you didn’t/weren’t able to 


g. it’s okay…I can see you all & know that you are spiritual narcissists too. We all are kind of. It’s just natural to think you have spoken to god & that he wants you to tell everyone else what he said, I mean we all do it, right??? RIGHT?


h. Actullya that’s not what happened to me.. Haaha. Ha. Ha. So stop being jealous. Just try having your own spiritual adventure when you can.


i. On top of all that…on top of writing about a spirituall narcissism that possesses us all , I will be weaving the tale of my chronic cyberstalker…


j. YES I HAD ONE FOR MANY YEARS(& probably still do, I just haven’t checked in awhile)


h. But I have never spoken of it aloud, or in print, because…even though I can be a very enraged weirdo, I’m also kind of a wuss when it comes to dealing with … err…ummm…. direct, head-on confrontation w/ someone who is harassing me for reasons unknown…


i. anyway… the cyberstalking took a dark, invasive turn in the summer of ’20 and we were forced to reckon with it


j. we had to decide what action we could/would/should take


k. it nearly tore us apart


l. the stress of it all caused me to seek help in the form of a new medication called Abilify. This is the drug that gave me akathisia for 3 months.


m. pardon me while I connect these dots … … … 


n. yway… I hope I can convey what an absolutely horrific confluence of events led us to our happy hobbity home in beautiful jasper Indiana.


NO BEIGE IN SIGHT (Aug 2022)



o. The other YUGE poetry endeavor I’m about to embark on is a thorough inquest into the works of BUKOWSKI. I have read some of his work. enjoyed it well enough. But I need to know why he is the most revered & emulated poet amongst well… … … white dudes.


p. Expect my full, unredacted findings here in The Octopus’s Diarrhea Garden


*. MY VERY OWN GENDER TRANSITION


a. I have 2 words for my 7th year on testosterone: ARM ACNE


b. don’t woryy I’m not gunna detranstion over it, jeez…


c. Autoandrophilia is the fire!


d. Can y’all believe I been on T for 7 years???!!! I can.


6. QUINTETLETS


a. the quintuplets names are ELOISE, ANAWEN, INGRID, IMOGENE, and ISABEL


b. their buns are PORTUGAL, ATTICUS, RUFUS, FLORA , and DORA


c. respectively


7. ART UPDATES


a. I love doing art, but god...it has been a lifelong learning adventure!!!!!!


b. !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!


c. the first 2 artworks were based on sketches I found in my akathias ia notebook. It is akathisia art.


d. [I also found some writing I did from that time period, which I had dismissed as garbage-ranting, but actually captures the experience pretty well. I’l share it with yall in a futurre blog]


e. ennyway… I’m taking a few months oof art to woork on pooetry


f. I hope you can handle that.


RUFUS & INGRID REACH A PEACE AGREEMENT RE: THEIR SINCERE APPRECIATION FOR EACH OTHERSES CULTURE



8. LET’S SEE…WHAT ELSE CAN I TELL YOU??


a. I guess that about covers it for now!!


b. Stay well & I’ll see you next ime… in The Octopud Litterboxery